Baja Fresh supports Progeria research
April 26, 2010

Eight months ago, Baja Fresh kicked off a year long awareness and fundraising campaign in 85 restaurants nationwide.  Coin collection boxes will be by the registers at the ‘mexican grill’-type chain for four more months.

Baja Fresh owner David Kim told the Progeria Research foundation he wanted to help: “The Progeria Research Foundation is a cause we’re proud to support.”

Baja Fresh also regularly holds fundraising nights for various organizations where they donate 15 percent of their net proceeds from the event back to the organzation. 

Click here to find a Baja Fresh near you that supports PRF.

Children Diagnosed with Progeria in the World
April 5, 2010

There are currently 64 known children living with Progeria in the entire world.  Below is a map that allows you to move from country to country and by clicking on the blue placemarkers, you can view how many children are diagnosed with Progeria in that country.

The ‘Find the Other 150’ Campaign is an effort by the Progeria Research Foundation to find the, statistically, other 150 children living with Progeria in the world.

Timeline
April 4, 2010

This link will lead you to a flipbook displaying some of the remarkable accomplishments of the Progeria Research Foundation in the past ten years.

Poker for Progeria
March 22, 2010

The Progeria Research Foundation will host their 5th annual Poker for Progeria Event this Saturday, March 27, 2010.  The evening will include a silent auction, refreshments, raffles and more

Find a map below with directions to the Azorean Brotherhood Hall located at 20 Howley Street in Peabody, MA.  Tickets are $100 to play poker for 4 thousand chips, $100 to sponsor a table, or $25 to enjoy the evening and support the cause.  The first place prize will be approximately 3 thousand dollars if there are 120 players, in addition to five cash card prizes.  Blackjack tables will be available for those not playing poker who wish to gamble for fun.

The evening begins with registration at 6 pm, and the games start at 7.

Dr. Oz Show Monday March 8, 2010
March 16, 2010

Photo Courtesy DoctorOz.com
Photo Courtesy of ToledoFreePress.com

 

     Kaylee Halko and her parents, Tim and Marla appeared on the Dr. Oz show Monday. Staffers had contacted them after viewing the TLC documentary “6 Going On 60” that Kaylee appeared in.

     Progeria Research Foundation Medical Director Leslie Gordon and University of Michigan’s Dr. Jeffrey Innis joined the Halkos on the show.  Dr. Innis originally diagnosed Kaylee in 2004 and practices at University of Michigan C.S. Mott Children’s Hospital.

    Audrey Gordon told the Toledo Free Press that they were thrilled the medical show was interested in Progeria and raising awareness for the rare condition.

Progeria to be featured on The Dr. Oz Show
March 4, 2010

     Progeria will be the topic of The Dr. Oz Show on Monday, March 8.  The show airs at 5 pm est on the FOX channel in the Boston area.  Check your local listings for details. The Progeria Research Foundation’s Medical Director, Leslie Gordon will be appearing along with Kaylee Halko and her family.  Kaylee is a six year old girl with Progeria.

     Dr. Mehmet Oz previously appeared on the Oprah Winfrey Show and began The Dr. Oz Show in September, 2009.  Oz was Time Magazine’s 44th Most Influentional Scientist and Thinker in 2008.

Pancake Breakfast in Kentucky
February 26, 2010

     The family of Zach Pickard is hosting a Pancake Breakfast  and Silent Auction on March 6, 2010. The event will take place at the Frankfort, Kentucky Applebee’s from 8 to 10 in the morning. Ticket can be purchased at the door for five dollars.
     The Kentucky chapter of the Progeria Research Foundation rose over $100,000 in the past two years.
     Zach has appeared on numerous news shows in Kentucky as well as TLC’s documentary “6 Going On 60.” He is currently enrolled in PRF’s triple drug trial at Children’s Hospital Boston.

**UPDATE**

The following is a photo of Zach with his aunt and uncle at their successful Applebee’s fundraiser:

Photo Courtesy State-Journal.com