UK Reunion 2010
April 29, 2010

     Hayley Okines is a 12 year old girl from the UK living with Progeria.  She is raising money to fund a 2010 UK Reunion for children around the world with Progeria. The event will be held August 6-12. Hayley and her family are trying to raise £30,000 to make this dream come true.  They have participated in events across the country but want to hold the reunion in the UK for the first time.  So far, twenty four families have been invited and 10 are confirmed to attend.

Courtesy UK Progeria Reunion 2010 Facebook Page

     Hayley’s family said the funds will go towards travel, entertainment, and other expenses.  They are reaching out to many different sources for funding.  The Progeria Family Circle has donated £13,500.  Hayley’s mom, Kerry, said her daughter has been fortunate in her ability to take past trips, but she is hopeful she can fulfill this dream of Hayley’s as well.  Comments from supporters on the “UK Progeria Reunion 2010’s” Facebook page include, “It’s great to see you looking so well, I hope the treatment you receive in Boston continues to help you and I wish you all the best of luck in your fund raising for the reunion. You and your parents are truly an inspiration to us all!”

     Hayley is currently participating in the clinical drug trials with PRF in Boston, Mass.  Hayley recently visited Boston in April to attend the three day workshop attended by scientists from across the world.  

     Hayley’s story is one of hope as this preview of an upcoming documentary about Hayley shows:

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Baja Fresh supports Progeria research
April 26, 2010

Eight months ago, Baja Fresh kicked off a year long awareness and fundraising campaign in 85 restaurants nationwide.  Coin collection boxes will be by the registers at the ‘mexican grill’-type chain for four more months.

Baja Fresh owner David Kim told the Progeria Research foundation he wanted to help: “The Progeria Research Foundation is a cause we’re proud to support.”

Baja Fresh also regularly holds fundraising nights for various organizations where they donate 15 percent of their net proceeds from the event back to the organzation. 

Click here to find a Baja Fresh near you that supports PRF.